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Joined: 05/29/2011
Posts: 21
I know how you feel. I was diagnosed with psoriatic arthritis about 9 months ago, and it sucks! Imagine having your skin feel like a sunburn, and rheumatoid arthritis in your hands. The last Disney trip HURT so bad... lol.... but next trip should be a lot more enjoyable because we think we have it under control. But do what you need to do man. Want ya healthy!
Hey I have that too! I've had it since I was 20..it is awful! You need to move somewhere warm. My doctor told me it would be much worse if I lived up north. Another reason Bella will never move.
Oh Jeff! I want you to feel better soon! Hopefully Joe will bake you lots of cookies!
Im hoping to see how this summer goes. It will be the first summer where im close to symptom free. So im excited for it. Ive already said that for christmas I want battery powered heated gloves. This past winter was horrible. I dont know how many times I called off from work because of my hands... lol... btw... PM'ed ya to pick your brain if thats ok?
We need a forum for Disney lover's with autoimmune disorders. I don't have that exact diagnosis but another from the family of autoimmune disorders. I leave for WDW in 10 days and yesterday I had swollen knee and ankle joints. I couldn't walk! With trip to WDW scheduled in 10 days I figured I needed a steroid shot right away. Went to a doc in the box yesterday and she fixed me up. Today I can get around a little. Still stiff and sore but getting better. Worst case scenario, I guess I could rent one of those ECV things.
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Joined: 03/02/2011
Posts: 5438
I know how you feel. I was diagnosed with psoriatic arthritis about 9 months ago, and it sucks! Imagine having your skin feel like a sunburn, and rheumatoid arthritis in your hands. The last Disney trip HURT so bad... lol.... but next trip should be a lot more enjoyable because we think we have it under control. But do what you need to do man. Want ya healthy!
Hey I have that too! I've had it since I was 20..it is awful! You need to move somewhere warm. My doctor told me it would be much worse if I lived up north. Another reason Bella will never move.
Oh Jeff! I want you to feel better soon! Hopefully Joe will bake you lots of cookies!
Im hoping to see how this summer goes. It will be the first summer where im close to symptom free. So im excited for it. Ive already said that for christmas I want battery powered heated gloves. This past winter was horrible. I dont know how many times I called off from work because of my hands... lol... btw... PM'ed ya to pick your brain if thats ok?
We need a forum for Disney lover's with autoimmune disorders. I don't have that exact diagnosis but another from the family of autoimmune disorders. I leave for WDW in 10 days and yesterday I had swollen knee and ankle joints. I couldn't walk! With trip to WDW scheduled in 10 days I figured I needed a steroid shot right away. Went to a doc in the box yesterday and she fixed me up. Today I can get around a little. Still stiff and sore but getting better. Worst case scenario, I guess I could rent one of those ECV things.
Oh yuck... that just doesnt sound good at all. Hope everything clears up for you!
Before I was diagnosed with this I was getting cortisone shots in my hands and wrists. Oh how I hated them! But man... I felt like a kid for a couple days... lol
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Joined: 12/08/2010
Posts: 427
I know how you feel. I was diagnosed with psoriatic arthritis about 9 months ago, and it sucks! Imagine having your skin feel like a sunburn, and rheumatoid arthritis in your hands. The last Disney trip HURT so bad... lol.... but next trip should be a lot more enjoyable because we think we have it under control. But do what you need to do man. Want ya healthy!
Hey I have that too! I've had it since I was 20..it is awful! You need to move somewhere warm. My doctor told me it would be much worse if I lived up north. Another reason Bella will never move.
Oh Jeff! I want you to feel better soon! Hopefully Joe will bake you lots of cookies!
Im hoping to see how this summer goes. It will be the first summer where im close to symptom free. So im excited for it. Ive already said that for christmas I want battery powered heated gloves. This past winter was horrible. I dont know how many times I called off from work because of my hands... lol... btw... PM'ed ya to pick your brain if thats ok?
We need a forum for Disney lover's with autoimmune disorders. I don't have that exact diagnosis but another from the family of autoimmune disorders. I leave for WDW in 10 days and yesterday I had swollen knee and ankle joints. I couldn't walk! With trip to WDW scheduled in 10 days I figured I needed a steroid shot right away. Went to a doc in the box yesterday and she fixed me up. Today I can get around a little. Still stiff and sore but getting better. Worst case scenario, I guess I could rent one of those ECV things.
I'd join that forum, while mine isn't exactly autoimmune, it's the best fit. I have fibromyalgia and boy does it make walking disney a difficult thing, Between sleeping less and pushing my body by the end of the week I can barely walk.
Offline
Joined: 03/02/2011
Posts: 5438
I know how you feel. I was diagnosed with psoriatic arthritis about 9 months ago, and it sucks! Imagine having your skin feel like a sunburn, and rheumatoid arthritis in your hands. The last Disney trip HURT so bad... lol.... but next trip should be a lot more enjoyable because we think we have it under control. But do what you need to do man. Want ya healthy!
Hey I have that too! I've had it since I was 20..it is awful! You need to move somewhere warm. My doctor told me it would be much worse if I lived up north. Another reason Bella will never move.
Oh Jeff! I want you to feel better soon! Hopefully Joe will bake you lots of cookies!
Im hoping to see how this summer goes. It will be the first summer where im close to symptom free. So im excited for it. Ive already said that for christmas I want battery powered heated gloves. This past winter was horrible. I dont know how many times I called off from work because of my hands... lol... btw... PM'ed ya to pick your brain if thats ok?
We need a forum for Disney lover's with autoimmune disorders. I don't have that exact diagnosis but another from the family of autoimmune disorders. I leave for WDW in 10 days and yesterday I had swollen knee and ankle joints. I couldn't walk! With trip to WDW scheduled in 10 days I figured I needed a steroid shot right away. Went to a doc in the box yesterday and she fixed me up. Today I can get around a little. Still stiff and sore but getting better. Worst case scenario, I guess I could rent one of those ECV things.
I'd join that forum, while mine isn't exactly autoimmune, it's the best fit. I have fibromyalgia and boy does it make walking disney a difficult thing, Between sleeping less and pushing my body by the end of the week I can barely walk.
Oh yuck... that has to be awful. Im so sorry you have to deal with that. And im all for an area to let out problems like this. Maybe we can help each other out and give some type of tips for each other.